|
|

|
Categories: [Support Groups] [Advocacy] [Research] [Education]
Support Groups
A great list of support groups can be found here:
- Carcinoid Cancer Foundation, Inc.
Sister Carcinoid support groups: Northern California
- Northern California Neuroendocrine Fighters (NCNF)
- Contact: Kathy Arbanasi
- E-list: subscribe
- NorCal CarciNet Support Group
Chair: Jeanette Shaffner
- Kaiser Permanente Carcinoid Support Group in Northern California
- Meets the first Saturday of each month from 1:00 PM to 4:00 PM
- Kaiser Permanente Medical Center
- Medical Office Building
- 3rd Floor, Classroom 1
- 1600 Eureka Road
- Roseville, CA 95661
- Contact: Toni Hussain
Sister Carcinoid support groups: Southern California
- Carcinoid Fighters
Contact: Patricia Gerenday
Tom May, Program Director
Redondo Beach Wellness Community:
Phone: 310-376-3550
Travel and housing:
- Angel Flight America
- Patient Travel
- www.nahhh.org
- Carcinoid Cancer Foundation travel info
Financial assistance:
- Healthwell Foundation
- Novartis -Patient Assistance Program (PAP)
Advocacy
Carcinoid advocacy
- LM Carcinoid Cancer Foundation (LMCCF)
- Cancer Legal Resource Center
Joanna Morales, Esq. Director
Toll Free: 1-866-The-CLRC or 1-866-843-2572
Phone: (213) 736-1455
TDD: (213) 736-8310
Fax: (213) 736-1428
Lance Armstrong Foundation
National Coalition for Cancer Survivorship
Patient Advocate Foundation
Find Cancer Experts
The Wellness Community- South Bay Cities
Tom May, LCSW, Program Director
109 W Torrance Blvd., Suite 100
Redondo Beach, CA 90277-3636
Phone: 310-376-3550
FAX: 310-372-2094
TWC-Pasadena
200 E. Del Mar, Suite 118
Pasadena, CA 91105
626.796.1083 • 626.796.0601 Fax
Executive Director - Beverly Rouse
Program Director - Douglas Ware
TWC-Valley/Ventura
530 Hampshire Road
Westlake Village, CA 91361
Info 805.379.4777 • 805.371.6231 FAX
President - Suzanne Drace
Program Director - Marty Nason, RN, MN
TWC-West Los Angeles
2716 Ocean Park Blvd., Suite 1040
Santa Monica, CA 90405-5211
310.314.2555 • 310.314.7586 FAX
info@twc-wla.org
Program Director - Michael States, MA, MFT
Carcinoid awareness merchandise
- Carcinoid Awareness Items Book
Carcinoid Tumor: A Guide to Diagnosis &Treatment
Contact: Nickolette Way
- Awareness products: pins, earrings, bracelets, necklace, zipper pull, T-shirt, return address labels
Contact Carol Anne Wilson • Web site
- Serotonin Jewelry
Molecular structures (necklaces, lapel pins)
Bracelets black & white awareness
Carcinoid Cancer Awareness Network

Research
InterScience Institute (ISI)
- A speciality lab tests for Neuroendocrine & Carcinoid
Mia Tepper
944 W. Hyde Park Blvd., Inglewood, CA 90302
Toll free phones: (800) 255-CURE • (800) 421-7133 • Fax: (310) 677-2846
Email: intersci@earthlink.net
Education
Carcinoid Specific Websites
- The Carcinoid Cancer Foundation, Inc.
- Caring for Carcinoid / Breaking News: listing of current articles
- Novartis Pharmaceutical - Carcinoid website.
Libraries and articles of relevance
- Oncology Channel
- American Cancer Society and the National Cancer Institute.
- Merck Manuals Online Library
- Cancer network
- Medscape
- PubMed
Cancer Websites
- Caring for Cancer “Your Complete Source for Knowledge and Support”
- The National Cancer Institute
- American Cancer Society
- Neuroendocrine Foundation
Categories: [Support Groups] [Advocacy] [Research] [Education]
|
|
|
| Quick Links: |
|
|
|
|
|
|
|
| SEA Partners: |
 |
 |
|
|
Carcinoid Tumor: A Guide to Diagnosis & Treatment |
|
| Site last updated: 7/30/08 |
|