Categories: [Support Groups] [Advocacy] [Research] [Education]

Support Groups

A great list of support groups can be found here:
Carcinoid Cancer Foundation, Inc.
Sister Carcinoid support groups: Northern California
Northern California Neuroendocrine Fighters (NCNF)
Contact: Kathy Arbanasi
E-list: subscribe
 
NorCal CarciNet Support Group
Chair: Jeanette Shaffner

Kaiser Permanente Carcinoid Support Group in Northern California
Meets the first Saturday of each month from 1:00 PM to 4:00 PM
Kaiser Permanente Medical Center
Medical Office Building
3rd Floor, Classroom 1
1600 Eureka Road
Roseville, CA 95661
Contact: Toni Hussain
Sister Carcinoid support groups: Southern California
Carcinoid Fighters
Contact: Patricia Gerenday
Tom May, Program Director
Redondo Beach Wellness Community:
Phone: 310-376-3550
Travel and housing:
Angel Flight America
Patient Travel
www.nahhh.org
Carcinoid Cancer Foundation travel info
Financial assistance:
Healthwell Foundation
Novartis -Patient Assistance Program (PAP)

 

Advocacy

Carcinoid advocacy
LM Carcinoid Cancer Foundation (LMCCF)

Cancer Legal Resource Center
Joanna Morales, Esq. Director
Toll Free: 1-866-The-CLRC or 1-866-843-2572
Phone: (213) 736-1455
TDD: (213) 736-8310
Fax: (213) 736-1428

Lance Armstrong Foundation

National Coalition for Cancer Survivorship

Patient Advocate Foundation 

Find Cancer Experts

The Wellness Community- South Bay Cities
Tom May, LCSW, Program Director
109 W Torrance Blvd., Suite 100
Redondo Beach, CA 90277-3636
Phone: 310-376-3550
FAX: 310-372-2094

TWC-Pasadena
200 E. Del Mar, Suite 118
Pasadena, CA 91105
626.796.1083 • 626.796.0601 Fax
Executive Director - Beverly Rouse
Program Director - Douglas Ware

TWC-Valley/Ventura
530 Hampshire Road
Westlake Village, CA 91361
Info 805.379.4777 • 805.371.6231 FAX
President - Suzanne Drace
Program Director - Marty Nason, RN, MN

TWC-West Los Angeles
2716 Ocean Park Blvd., Suite 1040
Santa Monica, CA 90405-5211
310.314.2555 • 310.314.7586 FAX
info@twc-wla.org
Program Director - Michael States, MA, MFT
Carcinoid awareness merchandise
Carcinoid Awareness Items Book
Carcinoid Tumor: A Guide to Diagnosis &Treatment
Contact: Nickolette Way

Awareness products: pins, earrings, bracelets, necklace, zipper pull, T-shirt, return address labels
Contact Carol Anne WilsonWeb site

Serotonin Jewelry
Molecular structures (necklaces, lapel pins)

Bracelets – black & white awareness
Carcinoid Cancer Awareness Network

 

Research

Drug and Prescription Interaction Information
InterScience Institute (ISI)
A speciality lab tests for Neuroendocrine & Carcinoid
Mia Tepper
944 W. Hyde Park Blvd., Inglewood, CA 90302
Toll free phones: (800) 255-CURE • (800) 421-7133 • Fax: (310) 677-2846
Email:  intersci@earthlink.net

 

Education

Carcinoid Specific Websites
The Carcinoid Cancer Foundation, Inc.
Caring for Carcinoid / Breaking News: listing of current articles
Novartis Pharmaceutical - Carcinoid website.
Libraries and articles of relevance
Oncology Channel
American Cancer Society and the National Cancer Institute.
Merck Manuals Online Library
Cancer network
Medscape
PubMed
Cancer Websites
Caring for Cancer “Your Complete Source for Knowledge and Support”
The National Cancer Institute
American Cancer Society
Neuroendocrine Foundation

 

Categories: [Support Groups] [Advocacy] [Research] [Education]

 
Quick Links:
Next meeting:
August 16
Special Event:
September 20


Zebra spotlight on…
Jean McGreevey
 
SEA Partners:

Carcinoid Tumor: A Guide to Diagnosis & Treatment

Site last updated: 7/30/08
 
 
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