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Janice Green
In 2000, I was diagnosed with Type I Gastric Carcinoid, related to Pernicious Anemia, and Autoimmune Atrophic Gastritis. They found a tiny 3mm size tumor and removed it through an endoscopic procedure. 8 months later they found two more tiny 3 mm tumors and scheduled a surgery to remove my entire stomach on 11-27-2000. I cancelled the surgery and requested a second opinion. The physician recommended that I do a routine EUI every 3 to 6 month to remove, and manage any new tumors, which I have been doing for the past 6 years, during which time they only found one microscopic cell, that was too small to identify.
My new cancer doctor told me if I didn't remove my stomach I would be dead by 2006. He advised me to eat a lot of protein, which I did. Shortly after I began eating a lot of protein: I had violent headaches:every joint in my body ached; I had a fever and I felt so disoriented I couldn't think clearly. I went to see a chiropractor/nutritionist regarding my joint pain, and explained to him my situation.
He told me that when you have autoimmune atrophic gastritis, related to pernicious anemia, your stomach stops producing hydrochloric acid, which is what is necessary to digest animal protein. He said because the protein is not being digested, it is putrefying in my intestines, and those toxins are being absorbed into by blood stream, causing protein toxemia - which can be fatal, and it is the reason behind my violent headaches and joint aches. Hydrochloric acid is what triggers the gastrin to shut off in your stomach when ever you eat food. With out it, you over produce gastrin. When you over produce gastrin, it stimulates the growth of carcinoid. If you suppress your gastrin by not eating animal protein, and by taking hydrochloric tablets along with meals, you can stop or at least slow down significantly the growth of carcinoid.
He recommended that I stop eating all animal protein, and that I begin taking hydrochloric tablets, with my meals to help me digest my food. Eat 85% fresh fruit and vegetables to get natural enzymes to help digest food. Eat whole grains, nuts, and seeds, legumes. No sugar, white flour, breads, dairy, animal protein, chemicals, preservatives, and drugs. Within two weeks, I went from feeling like I was on my death bed to feeling like my old self.
I also told the nutritionist about the red flushing I was having, which is caused from excess histamine in my body which is due to not having enough hydrochloric acid, and too much gastrin. My endocrinologist wanted to put me on a sandostatin drug that my co-pay was $1260.00 a month. The nutritionist told me that vitamin C and magnesium suppress histamine. I rarely get one of those red flushes any more, and the two red splotches on my neck have completely gone away.
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Gary Harshman
I was diagnosed with carcinoid cancer in 1992 after surgery to remove a blockage in my bowel near the ileum. In 1997, almost five years to the day, a semi-annual CT scan picked liver metastases. Not much information was available back then regarding this cancer.
SEA4carcinoid is such a great group. We are lucky to be able to talk one-on-one with patients who have gone through most of, if not all treatments available to us. Knowledge is power, after all, advice is just that, and each individual will need to make those final treatment decisions when needed.
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