Lou & son Bob Baker

I was thrust into the world of carcinoid cancer in November 2005. In a pre-surgery exam for knee surgery, I had a chest x-ray. I got a call that I had a spot on my lung. Later I had a cat scan. It showed three nodules . On February 10, 2006 I had a biopsy. On Valentines Day I found out I had carcinoid. On May 18, 2006 the middle lobe of my right lung was removed.

Priscilla Christian with husband Bruce

It can happen to anyone—you have a chest x-ray, the next day you get a phone call, and you hear a doctor say you have a tumor in your lung. Uncertain what the future holds, you have surgery to remove the lung and doctors tell you the tumor was carcinoid?!?

While it doesn't happen often enough, you can also have no more symptoms or evidence of tumor for years later. Since 2003, that’s been my story. Groups like SEA4Carcinoid help us noids to have peace of mind that no matter what—we can be vigilant, find the best doctors, and keep up with medical advances for early detection and proactive care.

Peter Falbo

When first told, it was hard to believe. Since the September 2006 revelation, it has been days of treatment, wondering and waiting. Carcinoid for me opened a scary place, and a hopeful place. Scary that I didn’t know what was next. It became a helpful place because of the treatments and support. Also, because I decided to retire from work and start a new stage of life in pursuing personal interests.